Hello,
I’m taking part in the RideLondon-60mile challenge to raise funds and support for TOFS. TOFS offer support for babies born with Oesophageal Atresia/Tracheo-Oesophageal Fistula (OA/TOF) and their parents.
Our beautiful son Hugo was born with OA/TOF 8 months ago. As with most parents who have a child born with OA/TOF this was completely new to us and a condition we knew nothing about. The TOFS charity and resources have been invaluable to us in navigating this and so we want to help in raising funds for the charity and spreading awareness of this rare condition.
Hugo had a challenging start to life with having to undergo surgery the day he was born, followed by a 17-night-stay in Temple Street Children’s Hospital where his team took such wonderful care of him and us. Thanks to his incredible mother Clodagh, healthcare team, our extended family and friends, he is now thriving.
Hugo, you are an absolute fighter and we are in complete awe of you every day. You are the happiest little man with the most beautiful smile that lights up every room. There is no greater joy in this world than watching you grow and thrive every day. We couldn't be prouder to be your parents.