Neil Johns is running the Great North Run for TOFS

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Story

I’m running the Great North Run for TOFS on Sunday 11th September. 

As you may already know, Sammy was born with OA/TOF (Oesophageal Atresia / Tracheo-Oesophageal Fistula) and other associated issues. This is where his stomach joined his windpipe and his food pipe was a blind pouch, so nothing would pass into his stomach and would cause him to choke on his saliva. Although he’s surgically fixed, he’s not cured, lives with a number of issues and has had many operations to help food reach his stomach, along with spinal cord surgery.

TOFS is very close to my heart and provides much support to our family, so I’ve decided that this year I’d complete my first half marathon to raise money for them. Running a half marathon is not something I thought I’d do in a million years, but after travelling to Newcastle to support the 2021 runners, I was inspired. Training is going well and I’ll hopefully achieve a good time, I just need as much support as I can from friends and family (and donations) to keep me going!

About TOFS

TOFS vision is for anyone born with OA/TOF to be able to live life unlimited.

TOFS are working towards a world in which those born with OA/TOF live long and healthy lives, unconstrained by the impact of being born with these conditions.

Forty years on since becoming a charity, TOFS are still helping families through the challenges of bringing up a child with OA/TOF, VACTERL and associated conditions, but now, with an increased focus on support for the cohort of adults who live with the consequences of being born with OA/TOF. TOFS has always been keen to engage with clinicians and to support relevant research. Their activity in these areas has grown greatly especially since about 2010.

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Supporting

TOFS from TOFS (Tracheo-Oesophageal Fistula Support)

TOFS offers support to people born with Tracheo-Oesophageal Fistula (TOF) and/or Oesophageal Atresia (OA). These are rare congenital malformaltions of the gullet and windpipe. Immediate neonatal surgery is a treatment, not a complete cure. We are UK-based and receive no public-sector support at all.

226%

£1,132.25 raised of £500.00 target by 35 supporters

£951.00 donated plus £181.25 in GiftAid

When

From 20th June 2022. Until 30th September 2022.

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