My son Caleb was born in July of 2022 and before he reached a full day old was rushed to the amazing RVI hospital in Newcastle for surgery as he was born with a rare condition that meant he could not swallow. He was diagnosed with TOF/OA which affects around one every 3500 people.
A few months after Caleb's initial surgery he started to suffer with tracheomalacia. This meant a return to the RVI for more surgery. Through all that he has been through he is such a happy and cheerful boy. He brings so much joy to us all as a family.
Before Caleb was born none of us had even heard of the condition. It was a worrying and very stressful time. However one thing that helped us immensely was the TOFS charity. They were an enormous support in respect of information. Their book was never far from our side and we studied it in detail. We learnt a huge amount in a short time.
Since then we have been able to learn about the ongoing challenges we might face, how best to deal with those and the questions we should ask.
Of course all of this is only possible thanks to the generous donations that TOFS receive as a charity.
I felt that I wanted to help give something back to an organisation that gave so much to us, and so I entered to represent and raise funds for TOFS at the Ford Ride London 100 mile cycle in May 2024.
I'm asking if you would help me to reach my target for TOFS and pass on your encouragement for this big challenge! Every £ will help and we as a family will be very grateful.
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